In Reply to: Too many docs don't have definitive answers and then throw posted by whatever medications at a patient to see what works or doesn't SM on Fri, Jan 13 2023 at 04:47 PM CST:
Oops! Sent this off before writing the rest...
I forget the percentage of people with hydrocortisone allergy, but I seem to remember it was 3% of the population. The allergist said he had never seen it. Then the PRP pops up...apparently 800 people in the USA have that.
The weirdest thing is that I never had any kind of skin issues ever. No eczema, no psoriasis, nothing. I will read up on this MAST cell info. I recall hearing about MAST cells years ago in my early MT career. Again, thank you!
: I am so glad you are finally getting relief.
: I find it weird you're allergic to hydrocortisone, but that brings me to the next point.
: It's becoming more well known COVID causes MAST CELL ACTIVATION (I suspect vaccines may do that too) which makes people have allergic reactions to all sorts of things.
: "In mast cell activation syndrome, excessive amounts of inflammatory mediators are released in response to triggers such as foods, fragrances, stress, exercise, medications or temperature changes."
: There are facebook groups of people having your exact symptoms.
: That quotation above came from the clickable link at bottom of page. A pre-covid article from 2019) on "Mast Cells and Sensory Nerves Contribute to Neurogenic Inflammation and Pruritus in Chronic Skin Inflammation" It's like a vicious cycle.
: A newer article on Mast cell activation syndrome from long Covid. https://pubmed.ncbi.nlm.nih.gov/35938771/
: Very few doctors know how to treat mast cell activation, even the allergists.
: I have to think if Covid can cause this, so can the vaccines because they are similar to the disease itself.