[ Follow Ups ] [ Post Followup ] [ Main Board ]

It's a long story and difficult to give the condensed version,

Posted by but I'll try... on Fri, Jan 13 2023 at 09:25 AM CST:

In Reply to: Are you having other symptoms of psoriasis? posted by How is it treated? sm on Thu, Jan 12 2023 at 12:04 AM CST:

They first thought it was eczema. Stronger and stronger topical hydrocortisone preparations did nothing. Come to find out, I am allergic to hydrocortisone. I was put on all kinds of medications, creams and ointments in the beginning: methotrexate, Eucrisa, tacrolimus...I can't remember them all. Nothing worked. Then I was put on Dupixent injections for six months as well as being given tapering doses of oral prednisone. Nothing worked. I was getting worse and worse. Three skin biopsies revealed "psoriasiform dermatitis, favoring psoriasis," but not definitive.

After six months of no improvement on Dupixent, that was discontinued and I was put on Skyrizi injections and started to show improvement. My doctor then diagnosed me with PRP (pityriasis rubra pilaris) and started acitretin in addition to the Skyrizi.

After 18 months of purplish-red lesions all over my body and intense itching everywhere, I finally started to show great improvement. I am now off the Skyrizi because of serious side effects and have tapered down on the acitretin to three capsules per week. My skin is 95% clear. The only visual residual left are some spots on my lower legs. It's been quite an ordeal. My biggest complaint during all of this was the relentless itching for 18 months. That included very little sleep. It was awful, but my prayers were ultimately answered, and I am doing very, very much better.

On a side note (and this is not a discussion I wish to have), I think all of this was related to covid and/or the vaccines (two vaccines and one booster). I never had skin issues prior to this crap.

Follow Ups:

Post a Followup




Optional Link URL:
Link Title:
Optional Image URL:

[ Follow Ups ] [ Post Followup ] [ Main Board ]