Welcome! We appreciate your comments and suggestions!
Be sure to post your introduction and ask those important questions at cleftAdvocate's Family-to-Family Connection!
| Name | stephen s. revil |
| Homepage | |
| State or Country | philippines |
| Comments | hi i'm tipong , i was born with bilateral cleft palate.....but inspite of that i was able to finish college and earn a degree of MECHANICAL ENGINEERING...now with some sponsor and OUR LADY OF PEACE HOSPITAL FOUNDATION alongside with NOORDOF FOUNDATION , i'm having my speech and appearance improvement...to those adult or teen clefts...i would like to have an internet communication with all of you people then maybe we could share information and build an internet community for us....feel free to email me |
| How did you hear about Cleft Advocate? | internet |
| Date | november 7, 2008 |
| Name | bonnie |
| smith | |
| Homepage | |
| State or Country | n.c. |
| Comments | Close friend brought home her wonderful daughter from China who was born with unilateral cleft lip and palate. Just wantiong to know more so that I can be supportive as posssible. |
| How did you hear about Cleft Advocate? | |
| Date | 10-28-2008 |
| Name | heriyanto |
| augheri at yahoo dotcom | |
| Homepage | http://cblindonesia.ning.com |
| State or Country | Indonesia |
| Comments | I am also have a cleft. This website, especially gallery section has accompany me in my "jorney", and also give me inspiration to initiate a community for parents and individuals with cleft in my own country, Indonesia. Congratulations for all your effort to advocating about cleft. |
| How did you hear about Cleft Advocate? | Internet |
| Date | 09/20/2008 |
| Name | DIMITRA |
| Homepage | |
| State or Country | Greece |
| Comments | Hi my name is Dimitra and i am from Greece.i was born 28 years ago with Goldenhar syndrome. i have done many operations since then and now i can say i am ok.thank god.this is the first time that i see that there are many people like me.This is a good site and i am glad that i found it. |
| How did you hear about Cleft Advocate? | by search |
| Date | 2/9/2008 |
| Name | Lauren |
| Homepage | |
| State or Country | England |
| Comments | Hi, i'm Lauren and i'm 11yrs of age.I have a CLEFT LIP AND PALLET. I've got braces and as you may no,cleft lip and pallet does (can) affect the eye(s),ear(s)speach , i went to a speach therepist when i was younger but my speach seems to be O.K! I've also had operations a.c.t + hostpical oppointments for the last 10 yrs,and i'm having my main operation to straghten my nose when i'm 15-16.My last operation i had when i was 9 didn't work because my tooth didn't grow, so insted of having another operation,there going to put me a false tooth in! I'm also worried about getting name called when i go to high school-but i no to go tell a teacher if it gets carried away, what if teachers pick on me(doubt that will happen)? Any way i'd like to thank CLAPA and MY OREL DOCTORS MR ICE so sorry you have to leave MR SPENCER AND ALL THE OTHER PEOPLE THERE IN MY TEAM.SPECIAL THANKS TO MY FRIENDS AND MY BOYFRIEND FOR ALWAYS SUPORTING ME AND STICKING UP FOR ME AND MOST OF ALL MY FAMILY- AND ME FOR BEING A BRAVE LITTLE GIRL! XXXXXXX |
| How did you hear about Cleft Advocate? | CLAPA |
| Date | saterday 19th July 2008 |
| Name | Paul "Billy" Wolfe |
| Homepage | |
| State or Country | Pennsylvania |
| Comments | I've been associated with AboutFaceUSA, as well The Cleft Advocate for many years now. I've met many great parents, who are always asking me where they can go for some help. And I will go out of my way, to get them where they have to for some assistance for a child with a cleft problem. That is my life, to fight for what I feel is only right for the best of those who have a cleft palate or a cleft lip. I've been to Washington, DC, spoken to four United States Presidents and countless members of both the Senate as well the House. I care about those with a cleft, because I am one of them! Thank you for allowing me this chance, to express my support and for giving the chance to say that I care about the families of a cleft palate or cleft patient. Feel free to contact me, and I will do all that I can to assist you no matter what you live in the great United States of America. Sincerely, Paul "Billy" Wolfe |
| How did you hear about Cleft Advocate? | A Friend |
| Date | June 19th, 2008 |
| Name | Paul Rushing |
| Homepage | http://www.squidoo.com/cleftlipchild |
| State or Country | Brusniwck, GA |
| Comments | We have a 3 year old who has a bilateral cleft lip and palate and have been fortunate to find all of the answers we need at sites like this. We are stating to give back by making our story available online. |
| How did you hear about Cleft Advocate? | |
| Date | 5/6/08 |
| Name | Christy |
| Homepage | |
| State or Country | Ga |
| Comments | i never had no idea that a website like this existed thank you for being here its a wonderful website |
| How did you hear about Cleft Advocate? | cleftclub |
| Date | 5-5-08 |
| Name | Amy McLendon |
| Homepage | |
| State or Country | Alabama |
| Comments | I have two daughters both born with unilateral cleft lips. My second daughter also has a notch in her alveolar ridge. I found this website to be a huge comfort & resource in my search for cleft answers. Thanks so much. |
| How did you hear about Cleft Advocate? | internet google search |
| Date | 04/28/2008 |
| Name | Rebecca |
| Homepage | |
| State or Country | Tennessee |
| Comments | I was born with bilateral cleft lip and palate,Sept 16,1956.Sometimes I feel like I'am the only one with this problem so I'am so thankful that I found this website it helps to read other peoples storys and know that I'm not ALONE!May God Bless Us All........ |
| How did you hear about Cleft Advocate? | internet |
| Date | 04-21-2008 |
| Name | Barrie D. Meyer |
| Homepage | |
| State or Country | Australia |
| Comments | I have found your website very interesting as I was born with a Cleft Palate & Lip and it was 64 years ago. I think babies are so very much more fortunate with modern Surgical techniques of today. I am a Nurse in the Surgical Ward at the Adelaide Children's Hospital and care for many Cleft Palate Babies. I always remember my dear Mum who looked after me having all the Surgical Procedures. May God be with you all doing such a wonderfull job! Barrie Meyer |
| How did you hear about Cleft Advocate? | |
| Date | 26/03/2008 |
| Name | myself |
| Homepage | |
| State or Country | Ireland |
| Comments | I am almost 21 i have a cleft lip and palate i have had numerous surgeries i have had 4 bone graphs an had my teeth alligned and i've had my palate repaired an recently jus had an operation on my lip i never wanted them they personally make me feel worse parents don't force your kids to have them its their choice i hate sites like this sites like this are just a sore reminder that i'm different its not helpful i wish i had never been born i hate myself |
| How did you hear about Cleft Advocate? | cjbsdjcbsj |
| Date | sjbdjfbjf |
| Name | Michelle |
| Homepage | |
| State or Country | NC |
| Comments | My son, Brice, was born in December with a bilateral cleft lip and palate. This website has helped answer tons of questions that I have had outside of his doctors' offices. |
| How did you hear about Cleft Advocate? | UNC-CH |
| Date | 2/15/2008 |
| Name | chima |
| Homepage | |
| State or Country | cote d' ivoire |
| Comments | nice site for my guys out ther |
| How did you hear about Cleft Advocate? | news |
| Date | 09.02.08 |
| Name | Amanda |
| Homepage | I have a myspace |
| State or Country | Indiana |
| Comments | My name is Amanda. I am 20 years old. I was born with a unilateral cleft lip. I have had five plastic surgeries, the first when i was three months. This site was so moving, and all the people that either have children with clefts or people who have a cleft themselves. I never knew there was any type of website, or organization to support us. It makes me more than happy to say that I never would have asked for my life to be different, or to look any other way than I do. There are lots of people that don't understand and may ask, but I see it as nothing more than a blessing, and makes me God's special girl!! My parents when i was born were both very confused, and kind of sad. Neither of them knew anything about clefts. It can be a very scary thing. My grandmothe had a friend that found out a few years ago that her daughter was having a little boy with a cleft, and the minute she saw me i think all of her fears were taken away. As i've grown the difference in the measurements of my lips has become slim to none, and looks very normal. I have a small scar that runs from the top of my right lip to my nose, but other than that you would never be able to tell. I would love to hear from any and all of you. This is such an amazing website, and organization. I'm happy you are all out there. Smile! You are all beautiful! |
| How did you hear about Cleft Advocate? | Found it when surfing the internet |
| Date | 2.3.08 |
| Name | Ann |
| Homepage | |
| State or Country | New York |
| Comments | what a pleasant surprise this website was.. was out looking for assistance with a problem my daughter is having and I stumbled on to this. I cannot wait for her to visit this site as well. My daughter is 23, college graduate (yeah!) and has a unique cleft problem. She has had over 69 separate procedures since she was 3 days old. She was born with aminotic band syndrome which caused her severe facial deformities. She had a cleft palate, cleft lip, no nose, no right eye, missing parts of her skull,the eyelid above her one eye was on her forehead so she couldn't close her eyes at first and one sinus drained out a hole in the side of her face. Needless to say she is a walking miracle. THey didn't think she would live and here she is graduating from college and ready to start her own life with working with children. We have been blessed to have an amazing family and support system, incrediable doctors/nurses and the good lord keeping us together. What I am now looking for is anyone who has had a cleft palate that has separated. Brianna's had a small hole in the roof of her mouth and it is slowly opening the cleft. Her front fiscula's are now opening as well. We have been with her doctor for almost 22 years, but he is to the point where he is taking more time for himself (muchly deserved) and we just moved 2 and 1/2 hours away from his area...so we are at a crossroad and was wondering if anyone else had ever experienced the cleft reopening. I am so impressed with the comments and the support that is associated with this page.. keep up the good work. |
| How did you hear about Cleft Advocate? | |
| Date | 1/25/2008 |
| Name | Kev Archer |
| Homepage | |
| State or Country | UK |
| Comments | Helpful site, thanks |
| How did you hear about Cleft Advocate? | |
| Date | Jan 2008 |
| Name | Rhonda Horn |
| Homepage | |
| State or Country | Florida |
| Comments | Jacksonville, Fl 3yr old with Bilateral |
| How did you hear about Cleft Advocate? | convention |
| Date | 1/12/08 |
| Name | OWERRI |
| Homepage | N/B |
| State or Country | LOME |
| Comments | NICE PAGE |
| How did you hear about Cleft Advocate? | INTERNET |
| Date | 7/1/2008 |
| Name | Manju Khosla |
| Homepage | |
| State or Country | USA |
| Comments | Hello Everyone, My name is Manju Khosla and I am a resident of NewJersey. I am a student od Dental Assisting and doing a class project on "Cleft Palate". Cleftline.org and Debbie fron AboutfaceUSA.org have been very helpful in sending me information and giving me advice. I need some before and after surgery pictures of children with cleft palates. Please send me your child's pictures if you think it is appropriate for me to use them on my poster. My e-mail address is manjukhosla21@hotmail.com. All the very best to you in your efforts to make your child smile. Thank you, Manju |
| How did you hear about Cleft Advocate? | From Debbie of AboutfaceUSA.org |
| Date | 12-31-07 |
| Name | Brittany Ferguson |
| Homepage | |
| State or Country | NC |
| Comments | my daughter severed her 7th cranial nerve in a car accident. She is six years old. She has had surgery to repair the nerve. |
| How did you hear about Cleft Advocate? | carepages.com |
| Date | 12/28/07 |
| Name | robert hardee |
| Homepage | |
| State or Country | nc |
| Comments | what a wonderful site,i was born with a left lip and palate cleft in eastern nc in 1960.one of the only doctors in the state that even did plastic surgery at the time was a wonderful man,a dr. valone that worked out of rex hospital in raleigh,nc.he did mine as a baby and another when i was 14.my mom said that he would come to the hospital near my hometown and all types of children and adults would be there and it would be hours waiting to see him. i was told by my ENT doctor that he had passed away and this ENT specialist called his colleagues at this busy office in to show them his work,he was a remarkable man..i remember you dr.valone and i thank you from my heart! |
| How did you hear about Cleft Advocate? | web search |
| Date | 12/07 |
| Name | amelia |
| Homepage | |
| State or Country | Illinois |
| Comments | I am 17 and I was born with bilateral clef lip and palate. It's been a tough journey for me these past seventeen years. I had my first surgery at 2months. i just had my second on last summer.I'll be getting ready for another summer of 2008. and about 3 more after that.I'm just happy to be me. I really don't have problems about the way i look, but sometimes people might say things and it really hurts.But i'm learning to brush it off, and move.People like that don't understand and probably will never understand what somebody in our condition goes through. I really love this website it has helped me a lot. I never knew they had sights like this where you can express your feelings to other people with the same problems.To all the young teens or anyone else going through this just stay strong and everything will just continue to get better. |
| How did you hear about Cleft Advocate? | browsing the web |
| Date | 12-18-07 |
| Name | Joe Oliver |
| Homepage | http://www.soft-vision.com |
| State or Country | Houston, Texas |
| Comments | God bless you for being there for so many and God bless Metin Bereketli for reaching out and sharing joy with many who truly need his magic touch. Joe Oliver Houston, Texas Merry Christmas http://www.soft-vision.com/2007/ http://www.soft-vision.com/hanoi/larson (PoW Christmas Stories) |
| How did you hear about Cleft Advocate? | Metin Bereketli |
| Date | 14 Dec 2007 |
| Name | James and Dana |
| Homepage | |
| State or Country | Missouri |
| Comments | My son Nathaniel was born on Nov 20th. He has a unilateral lip and bilteral palate. Thank you for all the information. James |
| How did you hear about Cleft Advocate? | Cleft palate team at childrens mercy hospital |
| Date | 12/14/07 |
| Name | Carrie VanGeertry |
| Homepage | |
| State or Country | Woodridge, IL USA |
| Comments | What a wonderful organization! I'm impressed. I had to write because I was born with a facial birth defect 49 years ago, and I never knew such a group existed. The left side of my face was paralyzed at birth. It may have been caused by the forceps delivery, but there is no way to know for sure. My face is not only very asymmetrical, but when I smile, only the right side of my face goes up. It is a very crooked smile to say the least. My unusual smile has earned me lots of rude comments and stares during my life. Thank you for being advocates for all the children out there with facial abnormalities and challenges. God bless you! |
| How did you hear about Cleft Advocate? | Figure magazine |
| Date | 11/27/2007 |
| Name | Carl Barton |
| Homepage | |
| State or Country | Iowa |
| Comments | My dad, son and myself all have bi-lateral cleft lip and palates. Aren't we blessed!!! If you need someone to email, I would be happy to help |
| How did you hear about Cleft Advocate? | Dan Roby's obituary |
| Date | November 16, 2007 |
| Name | Jessica Leatherman |
| Homepage | myspace.com/twiggyjl |
| State or Country | Brooklyn, NY |
| Comments | My daughter was born in August with a clefted septum. My Pediatricians and doctors kept telling us it was a skin tag all throughout the pregnancy and early weeks of her life. They are also baffeled, not really understanding what a clefted setum is only the plastic surgeons seem to be familar with this situation. You can imagine our surprise when we found out she indeed had a cleft! I'm curious to know if any of you who have had a child with a cleft or those of you who are affected by clefts have used or mothers have used steroid inhalants for asthma during pregnancy? |
| How did you hear about Cleft Advocate? | Surfing the web |
| Date | 11/8/07 |
| Name | Faye Sutton |
| Homepage | n/a |
| State or Country | Victoria, Australia |
| Comments | I just found this site while looking for info. on cleft lip/palate (4yr old son - soft palate cleft). The family stories are inspirational & at times heart breaking. My best wishes to you all. |
| How did you hear about Cleft Advocate? | found on internet |
| Date | 28/9/07 |
| Name | Leslie South |
| Homepage | |
| State or Country | Missouri |
| Comments | This site is a blessing! On September 15th,2007 after being a week over do, I gave birth to our beautiful daughter Ryleigh. She was born with a cleft lip. A very small one. It was undetected in the ultrasounds. It was a surprise. This is our first child and made me wonder what I did wrong. This site has help me cope. Thank you! |
| How did you hear about Cleft Advocate? | the hospital |
| Date | 9-25-07 |
| Name | Keri D'Alba |
| Homepage | |
| State or Country | GA USA |
| Comments | Thanks for all the info and links. I have 2 children with clefts and it has been very helpful. |
| How did you hear about Cleft Advocate? | googled you |
| Date | 9/24/07 |
| Name | Angelica Lugo |
| Homepage | |
| State or Country | California |
| Comments | I had a great time visitng the art gallery. I can't believe how much support there is for everyone. Growing up I felt alone, and now its wonderful to see wonderful people advocate for what is realy needed. |
| How did you hear about Cleft Advocate? | Serfing through the web |
| Date | 083007 |
| Name | Lisa Marie |
| Homepage | |
| State or Country | Texas |
| Comments | Hi..I am Lisa..I am 14 and I was born with Cleft-lip (on both sides of my lip) and cleft-pallet...And On July 3rd I had my bone graft surgery..and I have been on google..and all types of websites to talk to teens with cleft-lip...but I can't find any..aagh.....=[..but I would like to talk to a teen goy or girl my age..So we can both talk bout what goes on in our life... |
| How did you hear about Cleft Advocate? | |
| Date | 8/24/07 |
| Name | Angela |
| Homepage | bellsouth |
| State or Country | Georgia,USA |
| Comments | I just happened apon this site. I was born with unilateral complete cleft palate and lip. I am 46 yrs old. Looking for pen pal with same. I does help to talk. My email address is angelabarresi@bellsouth.net |
| How did you hear about Cleft Advocate? | just came upon it |
| Date | August 6, 2007 |
| Name | Cortney |
| Homepage | |
| State or Country | Texas |
| Comments | My daughter has Pierre Robin, which is a cleft palet and an abnornal lower jaw. I have been diagnosed with hypothyroid off and on from the time i was 23. Do any other of you mothers with a cleft baby have it, and was it treated during your pregnancy? |
| How did you hear about Cleft Advocate? | web |
| Date | 08/01/07 |
| Name | MARUJA MALLARI |
| Homepage | |
| State or Country | Philippines |
| Comments | I have a son who's now 8 years old operated with cleft lip when he was 6 months old and cleft palate when he was 18 months old. The problem now is,his palate returned with a cleft, which need a repair. It is expensive in doing this and we are looking for someone who can help us as donor. |
| How did you hear about Cleft Advocate? | |
| Date | 07/23/07 |
| Name | MARUJA MALLARI |
| Homepage | |
| State or Country | Philippines |
| Comments | I have a son who's now 8 years old operated with cleft lip when he was 6 months old and cleft palate when he was 18 months old. The problem now is,his palate returned with a cleft, which need a repair. |
| How did you hear about Cleft Advocate? | |
| Date | 07/23/07 |
| Name | Daphne Christensen |
| Homepage | www.dylanssmile.com |
| State or Country | Iowa |
| Comments | Hello friends! I am the mother of two little boys in Norwalk, Iowa. Our second son, Dylan, was born with bi-lateral cleft lip and cleft palate. In March of this year, I started a non-profit organization to provide support, encourage comaraderie and build awareness of facial birth defects. Please visit our website at www.dylanssmile.com! Thank you Cleft Advocate for all you do for our families! |
| How did you hear about Cleft Advocate? | I'm a PathFinder |
| Date | July 13, 2007 |
| Name | Judy Roberts |
| Homepage | |
| State or Country | Texas |
| Comments | Our son Andrew is 19 and is at the end of this cleft palate repair. He has had 10 surgeries and is suppose to have jaw surgery to finish off his correction. We have been denied all the way to the top of United Health Cares Insurance system. They will ONLY repair his jaw if it's cancer related or a traumatic injury. If is was palate surgery they would cover it.. We have been fighting for 6 months trying to have it done during our son's college break. Now because of the delays, IF we can finally get them to cover it, it probably won't happen until next summer because it is a 2 part surgery. If he isn't a full-time college student our insurance will drop him....If anyone has had a similar experience we would love to hear from you. Or if you have any suggestions on what our next step is, please let us know. Signed, A mom that is beyond frustrated..... |
| How did you hear about Cleft Advocate? | Doctor's Office |
| Date | 06/19/2007 |
| Name | Debbie Oliver |
| Homepage | www.cleftadvocate.org |
| State or Country | Las Vegas |
| Comments | Thanks and welcome to everyone visiting and/or signing the guestbook! It would be great if you could join us at the 2007 North American Craniofacial Family Conference (NACFC)! (www.cleftadvocate.org/nacfc.html). Enroll and introduce yourself at cleftAdvocate's Family-to-Family Connection! (www.cleftadvocate.org/ftfc.html) |
| How did you hear about Cleft Advocate? | Founder |
| Date | June 15, 2007 |
| Name | Kelli |
| Homepage | |
| State or Country | US |
| Comments | This is a great site. I almost 19 yrs old and was born with a double cleft lip and pallet. I have one small hole in the roof of my pallet that should be repaired in the future. I think this site is so informative. Its great to see familys reaching out to each other and supporting each other. |
| How did you hear about Cleft Advocate? | |
| Date | June 13,2007 |
| Name | Karen Lipman |
| Homepage | www.cleftbooks.biz |
| State or Country | Florida |
| Comments | It is wonderful to see families reaching out to help each other. That's for this wonderful website! |
| How did you hear about Cleft Advocate? | Internet |
| Date | May 30, 2007 |
| Name | Michelle McLardy |
| Homepage | |
| State or Country | Canada |
| Comments | This site is wonderful!Erin looks awesome.Her smile lights up her face.I can't believe some of the stuff I have seen.Before & Afters great work,just believable.I'm 35yrs old, I to have a cleft.I have had all operations.I'm looking for a Dr who will work on adults.I feel I need just a lil work still,my nose is crooked and one side goes up. |
| How did you hear about Cleft Advocate? | I found it !! |
| Date | May 28 /07 |
| Name | Gina Butchin |
| Homepage | |
| State or Country | Arizona |
| Comments | I was born in 1968 with a bilateral cleft lip and pallet - the second child in my family born with the condition. Took me over 30 years to get all the surgeries I needed. But I am finally done!! |
| How did you hear about Cleft Advocate? | Searching the internet |
| Date | 5-27-2007 |
| Name | REBECCA GIBSON |
| Homepage | |
| State or Country | Tennessee |
| Comments | I was born 1956 with a severe cleft palate,my mom was lucky enough to have the help of C.C.S for all the surgerys I had to go thru.I was married at 18 to a wonderful man we had good insurance to help us with my never ending needs for medical attention.And 10 years ago I found myself divorced and in a relationship I never thought would happen to me,and I dont know where to turn.I have no insurance, no money,no LIFE.My health is so bad now and my apperance I am so ashamed of my teeth have rotted what teeth I have left.The guy I live with is verbaly abusive,very controlling,he knows I have no insurance or money and he reminds me of this everyday and I feel like Im such a burden,I dont what to do or where to get help or even if I DESERVE it.I just know my nerves hurt for having to worry and live this way everyday.I would love to have a pretty smile and feel normal just one time for my grandaughter to see her nonna with a beautiful SMILE.Thank you for letting me share this I apologies for the tears even tho you cant see them. |
| How did you hear about Cleft Advocate? | internet |
| Date | MAY 22,2007 |
| Name | mugu aba |
| Homepage | |
| State or Country | lome-Ghana |
| Comments | l dey here mugu:::::::::::::::::::::::: |
| How did you hear about Cleft Advocate? | google.com |
| Date | 10/05/07 |
| Name | Antoinette Van Meter |
| Homepage | |
| State or Country | West Virginia |
| Comments | I was born in 1953 with Cleft Palata and Harelip and had all my plastic Surgeries from 1971 to 1973. Ran out of money. Never did finish them but I feel pretty. I never did see myself as Ugly. |
| How did you hear about Cleft Advocate? | Just looking at websites for Cleft Palata |
| Date | May 9, 2007 |
| Name | maga |
| Homepage | no |
| State or Country | lome togo |
| Comments | i dey here maga keep offfffffffffffffffffff |
| How did you hear about Cleft Advocate? | fine |
| Date | 2007 |
| Name | Lux May Tormis |
| Homepage | |
| State or Country | Philippines |
| Comments | my daughter had a cleft lip & palate but had already gone operations for both the lip & palate. thanks to operation smile, mariquita salimbangon yeung foundation, rotary club cebu and operation restore hope. soon... the last will be for her nose restoration... but still don't know if there still a free operation for this... it's expensive though if this will be done with a private surgeon. hopefully foundations can help my daughter and the rest who are still in need for the said operation... |
| How did you hear about Cleft Advocate? | website |
| Date | 04/14/2007 |
| Name | Melisa |
| Homepage | |
| State or Country | Utah |
| Comments | Hi, I have been trying to get ahold of a parent here on the site. Her beautiful daughters name is Naya. She and my daughter Aurika have the same syndrome and we have no luck getting ahold of them. We are so thankful for this site. |
| How did you hear about Cleft Advocate? | just browsing the internet |
| Date | 04/9/2007 |
| Name | CYNTHIA |
| Homepage | |
| State or Country | CALIFORNIA |
| Comments | I HAD MY CLEFT REPAIR IN 1961..AND THE REPAIR WAS DONE SO BEAUTIFULLY..PEOPLE REFUSE TO BELIEVE THAT I HAVE HAD IT DONE...DOCTORS ARE SO AMAZING |
| How did you hear about Cleft Advocate? | |
| Date | 4/2/2007 |
| Name | Carla Charbonneau |
| Homepage | |
| State or Country | Canada |
| Comments | I am new to this site. My new Email friend Milli (that also has a son with bilat.cleftlip palate) sent me this link last night. I am 22weeks pregnant now and not long ago I was told at my U/S that our son has a bilat. cleft palate. I am sure glad to of found first Milli that can relate and second this wonderful site. It is very helpful to me and my family. I feel very fortunate to be able to get prepared for my son as I know a lot of mom and dads were not this fortunate. Feel free to email me at any time If you have anything you would like to share with me. Take care. |
| How did you hear about Cleft Advocate? | Milli |
| Date | 2April2007 |
| Name | Chandra |
| Homepage | |
| State or Country | New Jersey |
| Comments | I am a 1st time mom at the age of 34. I am currently 37 1/2 weeks pregnant with my son. the doctors have discovered he has bilat cleft lip and partial palate deformation. I am very scared and uncertain about how he will thrive. i am reaching out to anyone who can possible shed some light on this for me. I have done tons of reserach, but i am unceratin on the type of surgeon i will need to choose for him and what secial bottles or pacifiers he will need. ANYONE WHO CAN RECCOMMEND ANY PRODUCTS, PLEASE CONTACT ME. Thank you |
| How did you hear about Cleft Advocate? | doctors offic |
| Date | 03/20/2007 |
| Name | Karen Nutt |
| Homepage | |
| State or Country | Claremont, California |
| Comments | I am a woman who was born with a cleft palate. I am interested in assisting parents and young people in the diagnosis and the treatments associated with cleft palates. My background is in child Development, early intevention services, and social services. If there is any way I can assist others, I would like to do this, as it is a difficult process to go through as a parent and also as a child. I have been successful in overcoming a great deal, it has not been easy, but I have come through. Please let me know if I can be of assistance. |
| How did you hear about Cleft Advocate? | Researched |
| Date | 3/19/07 |
| Name | mallam garuba |
| Homepage | www.yahoo.com |
| State or Country | london |
| Comments | please my guy live this i don land here seroiusly guy |
| How did you hear about Cleft Advocate? | very good |
| Date | 3/3/2007 |
| Name | Mario S. Fedele |
| Homepage | http://www.freewebs.com/mario5o/ |
| State or Country | BC, Canada |
| Comments | You have a wonderful site here. My son, Shaun, was diagnosed with Stickler's Syndrome. He had cataracts, hearing problems, a cleft palate of the soft tissue, and very maloccluded teeth, requiring him to wear braces. At age thirteen, he developed scoliosis that progressed to a 50% curve and needed surgery for it. I have written a book, titled "God's Gift," to chronicle his hardships. I am inquiring to see if you might be interested in having a look at it and possibly include it in your database. For further particulars, please visit my website. Mario |
| How did you hear about Cleft Advocate? | Search engine |
| Date | Feb. 23, 2007 |
| Name | Meg |
| Homepage | www.myspace.com/tinynutmeg |
| State or Country | Ohio |
| Comments | I was wondering if there is any scholarships for this year's convention. |
| How did you hear about Cleft Advocate? | CCAkids |
| Date | 2-14-2007 |
| Name | Malissa |
| Homepage | |
| State or Country | Georgia |
| Comments | I found this website to be so comforting. I have a unilateral cleft lip. My daughter, who is 2 1/2, has the same. She has undergone her first surgery, and she will probably have just one more. I find it so amazing that so many people endure this. As a child, I felt alone. It is nice to know there are other parents coping with this. |
| How did you hear about Cleft Advocate? | found it surfing the net |
| Date | 2/12/2007 |
| Name | Ashley Sosinski |
| perfect300x@yahoo dot com | |
| Homepage | |
| State or Country | Illinois |
| Comments | my 4 month old son is kelly mohr's grandson and he just underwent the first surgery to repair his cleft lip/palate. he is an amazing little boy with a heart of gold. we look at him everyday and realize that because of people like you and the doctors he is strong and going to be healthy. thank you so much for having a page for people like us to come and share our thoughts. you are wonderful. |
| How did you hear about Cleft Advocate? | Kelly Mohr |
| Date | 02-12-2007 |
| Name | Kelly Mohr |
| Homepage | |
| State or Country | Illinois |
| Comments | My 4 month old grandson was born with a complete bilateral cleft palet. He is such a little soldier and has been a sweet gift to us. We just came thru our first surgery yesterday....he is home this afternoon. We have such a long way to go, but we are so very grateful for the mircles of modern medicine and the life lessons that we have learned already from such a strong little guy whose little smile lights our world. |
| How did you hear about Cleft Advocate? | surfing |
| Date | 02/08/2007 |
| Name | Masoud Saman |
| Homepage | www.chancetosmile.com |
| State or Country | Texas, USA |
| Comments | All my regards to your wonderful website and organization. Let us all partake in helping those in need. If you are able, please visit our website www.chancetosmile.com ; we are new, so we need all the advice/guidance and help that we can get. Sincerely, Masoud Saman |
| How did you hear about Cleft Advocate? | MySpace |
| Date | Dec 31, 2006 |
| Name | Jennifer |
| Homepage | |
| State or Country | Polk |
| Comments | I have been getting biger and starting to get a belly and all but two test came back saying I am peragent. I have two boyz and trying for a girl. I hope Im becoming peragent. Everyone on my boyfriends side of the family are looking forward to having a baby. |
| How did you hear about Cleft Advocate? | web site |
| Date | 12/08/06 |
| Name | Marlena Martin |
| Homepage | |
| State or Country | New Mexico |
| Comments | My little cousin is Gabrielle from Illinois, from your brochure, and I know her mom, Lynne, has done nothing but praise all the help and support she has received. I was very excited to see Gabby on this site and I printed a brochure as part of a project I have for my studies at NMSU. Thank You!!! |
| How did you hear about Cleft Advocate? | via CCA Kids links |
| Date | December 2, 2006 |
| Name | Tina Cook |
| Homepage | |
| State or Country | Tennessee |
| Comments | My son Jeffrey is 9 years old and was born with a bilateral cleft lip and palate. We go to Shriners Hospital in Chicago to see his team of doctors and for him to have his surgeries. He has went through 5 surgeries and he will be getting ready for a bone graft surgery next. The Shriners are wonderful and I am so grateful for everything they have done for my son. They are awesome. I recomend people to get in touch with them. I think this website is great. Thanks:> |
| How did you hear about Cleft Advocate? | Debbie Oliver |
| Date | 11-30-06 |
| Name | Beth Raymond |
| Homepage | |
| State or Country | California |
| Comments | want to join your group |
| How did you hear about Cleft Advocate? | |
| Date | 11/28/2006 |
| Name | Aba Owerri |
| aba | |
| Homepage | |
| State or Country | USA |
| Comments | A very nice siteeeeeeeeeeeeee |
| How did you hear about Cleft Advocate? | no |
| Date | 14/11/2006 |
| Name | charmaine |
| Homepage | |
| State or Country | malta europe |
| Comments | i like to learn more about my situation thank you all |
| How did you hear about Cleft Advocate? | search |
| Date | 16-11-06 |
| Name | Chris Davis |
| Homepage | myspace.com/partykid |
| State or Country | Georgia |
| Comments | My 20 year old cousin Tom has a cleft palette & it relly hurts me to see the trouble he has with relationships because of it when all i see when i look at him is the sweet,careing & strong young man he has become.Viewing this site has let me know that many people around the world have the same problems as he has had. Thank you so much for this site! |
| How did you hear about Cleft Advocate? | Surfing |
| Date | 11/14/06 |
| Name | Billy Wolfe |
| Homepage | |
| State or Country | Pennsylvania |
| Comments | As always,when I travel across this great country of ours. I get the pleasure to meet Pathfinders, and to hear their personal stories and to help whenever I can. If there is a cry for assistance, and I hear that cry.I will do my best,to move any mountain so that a child or anyone needing assistance shall get it. I am so proud of those Pathfinders, that I've met and have had the chance to talk with over the past several months. But I also proud of those, that I've yet had the pleasue and honor to meet. Keep up the good work. GOD BLESS, Paul "Billy" Wolfe Personal Manager GLADYS HORTON & THE MARVELETTES Motown Records 1960-1970 |
| How did you hear about Cleft Advocate? | Ricki Anderson Gill |
| Date | November 11th, 2006 |
| Name | Billy Wolfe |
| Homepage | |
| State or Country | Pennsylvania |
| Comments | As always,when I travel across this great country of ours. I get the pleasure to meet Pathfinders, and to hear their personal stories and to help whenever I can. If there is a cry for assistance, and I hear that cry.I will do my best,to move any mountain so that a child or anyone needing assistance shall get it. I am so proud of those Pathfinders, that I've met and have had the chance to talk with over the past several months. But I also proud of those, that I've yet had the pleasue and honor to meet. Keep up the good work. GOD BLESS, Paul "Billy" Wolfe Personal Manager GLADYS HORTON & THE MARVELETTES Motown Records 1960-1970 |
| How did you hear about Cleft Advocate? | Ricki Anderson Gill |
| Date | November 11th, 2006 |
| Name | Billy Wolfe |
| Homepage | |
| State or Country | Pennsylvania |
| Comments | As always,when I travel across this great country of ours. I get the pleasure to meet Pathfinders, and to hear their personal stories and to help whenever I can. If there is a cry for assistance, and I hear that cry.I will do my best,to move any mountain so that a child or anyone needing assistance shall get it. I am so proud of those Pathfinders, that I've met and have had the chance to talk with over the past several months. But I also proud of those, that I've yet had the pleasue and honor to meet. Keep up the good work. GOD BLESS, Paul "Billy" Wolfe Personal Manager GLADYS HORTON & THE MARVELETTES Motown Records 1960-1970 |
| How did you hear about Cleft Advocate? | Ricki Anderson Gill |
| Date | November 11th, 2006 |
| Name | Kevin |
| Homepage | None |
| State or Country | B.C-Canada |
| Comments | Hi im 14 years old.Attending highschool. I have a left cleft pallet. It is a burden, but also a blessing because it shows you how people treat based on your looks.I have great friends and I want to become a police officer when I grow up, so I can help people. I have great marks, all B's and A's and I want to attend U.B.C. This is a great site =]... |
| How did you hear about Cleft Advocate? | Found site by searching info about left cleft pallet |
| Date | Nov 08/06 |
| Name | Trisha |
| Homepage | |
| State or Country | Sulphur, Oklahoma |
| Comments | I was also born with cleft lip and pallet. I am now 24yrs. I am a Police Officer and was in the office on the net. The way I was born has made me who I am today. I am very blessed because of it. This website is awesome, keep up the good work! |
| How did you hear about Cleft Advocate? | was just looking on the net |
| Date | 11/06/06 |
| Name | Steve |
| Legg | |
| Homepage | |
| State or Country | U.S. |
| Comments | Our daughter has a soft cleft palette. We were referred by A Lindahl at Joe Dimaggio Children's Hospital. We find this to be a great resource. Thank you for bringing all this information to one location. |
| How did you hear about Cleft Advocate? | A Lindahl at JDCH |
| Date | 10/30/2006 |
| Name | Dr Ajay Kantilal Kubavat |
| Homepage | |
| State or Country | INDIA |
| Comments | hello there this is dr.ajay i am an orthodontist from india and being actively treating cleft lip and palate cases on charity bases. i would like to attach with your organisation,and carry out my projects here in india if backed by you. i also want to serv the needy. thanking you ajay |
| How did you hear about Cleft Advocate? | i am an orthodontist |
| Date | 09/10/2006 |
| Name | tim tyson |
| timtysonyahoo.com | |
| Homepage | |
| State or Country | pa |
| Comments | my grand daughter has ceft send information on this please she has her first operation on oct 18th 2006 my address is tim tyson 4657 state route 103 north lewistown pa 17044 thank u i am worried alot thx i do not have a computor send it to that address please |
| How did you hear about Cleft Advocate? | my grand daughter has it ceft polit |
| Date | 9/29/2006 |
| Name | Pat Upton |
| Homepage | |
| State or Country | Arkansas |
| Comments | I am so impressed with both The CleftAdvocate as well AboutFaceUSA, I learned about these two great organizations from my good friend Billy Wolfe. May all parents of any child, who has either a cleft lip or palate. Find help and any assistance, through either one of these great organizations. May your wonderful work, always show that there is alight at the end of any dark tunnel in life. Pat Upton International Recording Artists Songwriter of The Multi-Million Hit MORE TODAY THAN YESTERDAY |
| How did you hear about Cleft Advocate? | Billy Wolfe |
| Date | September 22, 2006 |
| Name | Fox Family |
| Homepage | |
| State or Country | North Carolina |
| Comments | We are truly amazed at what the Lord has brought Little Jamie through.And we thank you for letting us be a part of this miracle.We want to say to Jamie we love you and you are a true little boy.May God continue to bless you. |
| How did you hear about Cleft Advocate? | Miracle Jamie Menis |
| Date | September 16,2006 |
| Name | Marloes |
| Homepage | http://www.homenurseinfo.com |
| State or Country | Nederland |
| Comments | Nice site! Rgds from the netherlands! |
| How did you hear about Cleft Advocate? | web |
| Date | 22/8/2006 |
| Name | Regina Cornett |
| Homepage | |
| State or Country | Tennessee |
| Comments | I have a son with cleftlip and palate. I have recently heard about cleft advocate and I know that this group will do everything possible to help anyone who are having issues with insurance like we are. |
| How did you hear about Cleft Advocate? | Mission of Hope |
| Date | July 17,2006 |
| Name | UZOAGBA |
| Homepage | http://www.ase.com |
| State or Country | OWERRI |
| Comments | I LOVE THIS VERY PAGE SO CARRY GO MY DEAR. |
| How did you hear about Cleft Advocate? | FRIEND |
| Date | 12/5/2006 |
| Name | Monica Parkinson |
| Homepage | |
| State or Country | UT |
| Comments | Brock is a UCLP and was born on 4/26/06. He is a joy in our lives. |
| How did you hear about Cleft Advocate? | friend |
| Date | 6/1/06 |
| Name | Chip Haines |
| Homepage | |
| State or Country | Ohio |
| Comments | Our newborn daughter was diagnosed with cleft palete. Our Pediatrician was very vague and provided little to no information. The Hospital discharged us with little to no information and/or supplies. they gave us a nipple. Of course we have researched this defect extensively (too extensively) and have ourselves pretty worked up. I'm trying to find the right information and supplies. |
| How did you hear about Cleft Advocate? | Google search for Nipples |
| Date | 05/20/06 |
| Name | mandana |
| Homepage | mandanaent.com |
| State or Country | Florida USA |
| Comments | GOD BLESS You for we are all GOD's children and made in his image...May HE continue to give you the strength to make it over obsticles and adversities for thru struggle comes strength! GODs blessings are yours, Mandana :0) |
| How did you hear about Cleft Advocate? | friend who had signed on in Feb! |
| Date | May 17th 2006 |
| Name | chloe |
| Homepage | |
| State or Country | inverness/scotland |
| Comments | hi im chloe im 14 n i was born wit clef lip and palate. when im older im goin to try and get rid of it |
| How did you hear about Cleft Advocate? | all the doctors n mum told me |
| Date | 15 may 2006 |
| Name | Peter Shin |
| Homepage | |
| State or Country | Fairfax, Virginia |
| Comments | Hi, My daughter was born with complete cleft lip and had surgery on December 29, 2005. She is very strong and healthy baby and she is about to having a DOC band for correcting her asymmetrical skull. I am concerned with her scar after the lip surgery. It has been about five month and the scar seems to get bigger compared to a couple of months ago. It becomes redder and thicker, and more visible. My doctor recommended messaging the area. So I message the area with Merderma kid three times a day. I am wondering which scar treatment will be work best for cleft lip surgery. Please let me know your wisdom on this. Thank you and I am looking forward to hearing from you. |
| How did you hear about Cleft Advocate? | Internet |
| Date | 4/28/06 |
| Name | Nikki R. |
| Homepage | |
| State or Country | USA |
| Comments | I am the younger sister of Tanya Roth who's story is under November 2003. Our family was the feature family of that month. I LOVE this site and I enjoy reading about other people's stories. Oh and Tanya and her husband are doing wonderfully in Missouri and she is going to college agian to become a professor. |
| How did you hear about Cleft Advocate? | Through my sister |
| Date | 4/19/06 |
| Name | Lux May Tormis |
| Homepage | |
| State or Country | Philippines |
| Comments | I'm a single mom with a 2yrs&10months old daughter with cleft lip and palate. She had her cleft lip operation when she was 8months old thru Operation Smile Foundation and by 2yrs old she also had her clef palate operated last November thru Rotary Club. I was reaaly thankful that there are people give their time and share their blessings to those people in need like my child. Now I'm planning to let her have a speech therapy but the problem is its expensive for me though with my limited budget and also her scar. If anyone could also help me in any way, I really aprreciate it. |
| How did you hear about Cleft Advocate? | surf |
| Date | April 14,2006 |
| Name | Ogłoszenia |
| Homepage | http://owi.pl |
| State or Country | Poland |
| Comments | nice site:) rally:) |
| How did you hear about Cleft Advocate? | |
| Date | 01.01.2006 |
| Name | amy |
| Homepage | |
| State or Country | massachusetts |
| Comments | Hello, visiting for the first time. My daughter turned a year old in December. She was born with bilateral cleft lip and palate (complete). She has had four surgeries to repair her, all done before she was a year old. Thank God for the clinic at Childrens Hospital in Boston. She has "THE BEST", and I mean "THE BEST", group of doctors. Dr. John Mulliken is a miracle worker. I could go on and on about this wonderful group of people who have done wonders for our daughter and have been a great support for my family. We call it "one stop shopping". They have everything you need under one roof, literally. We had the dental team, ear doctors, surgeons, nurses. Everyone we needed all associated with this clinic. The best part was that my husband and I did not have to worry about finding all these different doctors as they work together. They pretty much told us step by step what had to be done and by what age and they set up all our appointments and surgeries for us. This made our journey with our daughter less stressful because we were in the best hands. Anyway, I could go on and on about this. Anyone who would like more info on this group at Childrens Hospital Boston, please feel free to email me. Our daughter is doing fantastic and is not scheduled for another surgery until she is 8. Oh, and I might add, Dr. Mulliken did such a fantastic job that our daughter has hardly any visable scarring. People cannot believe it when they see her. She is the most beautiful gift my husband and I could ever have hoped for. |
| How did you hear about Cleft Advocate? | Debbie Oliver |
| Date | 03/22/06 |
| Name | Jennifer |
| Homepage | |
| State or Country | California |
| Comments | I was born with a double cleft pallet on June 23, 1989. Right when I was born my godmother found me Dr. Kawamoto who has been doing my surgeries I really do not know how many I had but this July 24, 2006 I will be getting my last and final surgery. I am now 16 and I can’t wait |
| How did you hear about Cleft Advocate? | Montell Williams |
| Date | 03 - 21 - 06 |
| Name | FRED |
| Homepage | http:// |
| State or Country | lag/nig |
| Comments | I came across so many stories of sick people on the websites so i decided to email everyone at once letting them know there is hope for them to live well again , after going through their cases i must confess to you that your case is a very little case for God to handle if only you will believe God's Word :ISAIAH 53 : 5 and confess it to yourself IN JESUS NAME ..........and believe what Isaiah said about the coming of the our lord Jesus in the above verse YOU WILL BE HEALED INRESPECTIVE OF THE SICKNESS ,THE ENTRANCE OF THY WORD GIVETH LIGHT .Romans 10;10 = WITH THE HEARTH MAN BELIEVETH UNTO RIGHTEOUNESS AND WITH THE MOUTH CONFESSION IS MADE UNTO SALVATION .....SO SAVE YOURSELF WITH YOUR MOUTH INSTEAD SPENDING UNNECESSARY MONEY IN HOSPITAL.(HAVE FAITH IN THE WORD OF GOD IT WORKS) but always in Jesus name . From my past experience in my church I have seen hopeless situations transformed by the spoken WORD of God from my pastor and miracles happens immediately IN JESUS NAME , Our pastor is sent by God you can view our church websites to read few testimonies from people : www.christembassy.org . Have a wonderful day and may the spirit of God directs you well . Fredrick Email:ibbmsc@yahoo.com |
| How did you hear about Cleft Advocate? | friend |
| Date | 1/03/06 |
| Name | amanda |
| Homepage | |
| State or Country | colorado |
| Comments | I am 28 years old and I was born with a full bilateral cleft palate. I have had over 20 surgeries. I have had a lot of experimental surgeries which has caused me to have a lot of scar tissue problems. I still have some nasality but they say it is the best it will get. I try to live with it the best I can but still it gets me down sometimes. Well, it was nice to see people speaking about their experiences with cleft palates and cleft lips. |
| How did you hear about Cleft Advocate? | surfing |
| Date | 3/16/2006 |
| Name | Bradford Lange |
| Homepage | |
| State or Country | Maine |
| Comments | Hello, My name is Bradofr L Lange and i have a Cleft pallet and cleft Lip. i am now 23 yrs old. and i have had over 20 sugerys due to my Birth Defect. And for al of thoes kids out there struggling with theer emotions and the way there peers look or comment DONT LET THEM GET YOU DOWN KEEP ON TRUCKING IT ONLY GETS BETTER WITH AGE. Thanx |
| How did you hear about Cleft Advocate? | Surfin the net |
| Date | 3/14/06 |
| Name | Saul Nadel |
| Homepage | |
| State or Country | New York City |
| Comments | Hello Everyone. I am 16 years old and I will start applying to colleges next year. I was wondering if anyone has any information about scholarships for people with cleft lip and pallate. Feel free to email me, it would be greatly appreciated. To those who are experiencing emotional stress because their son or daughter was just born with a birth defect, shouldn't worry. If they get the correct surgeries, they will end up fine. It just takes alot of time. |
| How did you hear about Cleft Advocate? | Web |
| Date | 3/8/06 |
| Name | luana moyer |
| Homepage | |
| State or Country | PA |
| Comments | I HAVE A LITTLE GIRL WITH A REPAIRED CLEFT LIP AND PALIT AND SHE IS DOING FINE NOW SHE IS 16 AND WELL. |
| How did you hear about Cleft Advocate? | MONTEL WILLIAMS |
| Date | 5-6-06 |
| Name | Sheryl |
| Homepage | |
| State or Country | Florida |
| Comments | I have a son who was born with Cleft lip and parital aveolus missing. I heard of your website and thought I will check it out. Good luck. |
| How did you hear about Cleft Advocate? | The Montel Show |
| Date | March 7, 2006 |
| Name | Kumar |
| Homepage | |
| State or Country | CA |
| Comments | I am new in this country. Our daughter is now 4 and has had surgery for cleft lip and palate in India. She has tiny but visible scar and her teeth are not in order. also we have concern about her speech also. Can anybody let us know which center is best for comprehensive care of such kids in los angeles area. |
| How did you hear about Cleft Advocate? | Internet |
| Date | 3/2/2006 |
| Name | MONA BEVER |
| Homepage | |
| State or Country | FLORIDA |
| Comments | MY SON DEVAN WAS BORN WITH ULCLEFTLIP AND PALATE. HE IS GOING TO BE 5 MARCH 1ST AND WE ARE APROACHING ANOTHER SURGERY. I WAS TRYING TO FIND OTHER PARENTS LIKE MYSELF AND TO FIND OUT USEFUL INFORMATION ABOUT SURGEONS. |
| How did you hear about Cleft Advocate? | INTERNET |
| Date | FEB. 20,2006 |
| Name | LaMont "Showboat" Robinson |
| Homepage | |
| State or Country | OHIO |
| Comments | I just met a very charming and interesting fellow, we did a game in Lewisburg, Pennsylvania two weeks ago. While there, we were delighted to meet Billy Wolfe a CleftAdvocate who just gave us the story about THE CLEFT ADVOCATE project. We support you, after meeting Billy we are truly glad to do whatever we can. Please keep in touch, THE HARLEM ROAD KINGS |
| How did you hear about Cleft Advocate? | Billy Wolfe |
| Date | 2/20/06 |
| Name | JON UZOAGBA |
| Homepage | HTPP/WWW.UZOAGBA.ORG |
| State or Country | LOME TOGO. |
| Comments | I LOV THIS SITE KEEP IT UP OK.MAGASSSSSSSS. |
| How did you hear about Cleft Advocate? | SEARCH ENG. |
| Date | 18-02-06 |
| Name | Monica |
| Homepage | |
| State or Country | Toronto (Canada |
| Comments | I love your site. My daughter was born with unilateral cleft, she had her first surgery 4 months ago and just doing great, her second one is coming up on a month. Well if anyone has any question youo can e-mail me. God bless you all and you will all be in my prayers. |
| How did you hear about Cleft Advocate? | From a Friend |
| Date | Feb 17 2006 |
| Name | terry morton |
| Homepage | |
| State or Country | maryland |
| Comments | My daughter was born with a cleft palate and pirrie robin syndrom. She is 17 yrs old and beautiful inside and out. I am so proud of her everyday for the person she has became. |
| How did you hear about Cleft Advocate? | surfing |
| Date | 021606 |
| Name | Joe Bailey |
| Homepage | |
| State or Country | California USA |
| Comments | I am 19 years old, 17 surguries to fix a bilateral cleft and unilateral palet, if you have any questions, or just wanna chat, feel free to email me. |
| How did you hear about Cleft Advocate? | |
| Date | 02-13-06 |
| Name | UWA |
| Homepage | ASIYEYE |
| State or Country | LOME TOGO |
| Comments | I AM UWA FROM TOGO GUYS |
| How did you hear about Cleft Advocate? | NICE STORY |
| Date | 11 _ 2_06 |
| Name | Debbie |
| Homepage | |
| State or Country | Illinois |
| Comments | My nephew was born with a cleft palate. We are having a difficult time feeding him. It takes about an hour for him to take 3 ounces and then he is so tired he falls asleep for 30 to 45 minutes before he wants to eat again. Out of a 24 hour period he only sleeps many 4 sound hours at night. And only because he is so tired. Any sugestions on bottles that have worked for anyone? |
| How did you hear about Cleft Advocate? | cleft palate search |
| Date | 2/4/06 |
| Name | Tiffany |
| Homepage | |
| State or Country | Georgia |
| Comments | I am a 21yr old college student and I was born with bilateral cleft lip/palate; Ive had about 12 surgeries, and I would not take back my birth defect if I had the choice, it has made me a very strong and outgoing person, even though I was teased like many kids who are born with deformities, I was always the most outspoken kid in my class. I wanted to also let parents know that "Shriner's Hospital" is a charity that has many hospitals around the country and they help children with reconstructive/cosmetic needs. All 12 of my surgeries ranging from age 4mnths old to now have been paid for by Shriners. Their toll free # is 18008758580, also you can get information online. I just wanted to let families that are struggling know this, I am so grateful for everything they have done and wish other families the best. If you have any questions, feel free to email me. |
| How did you hear about Cleft Advocate? | |
| Date | 1/27/06 |
| Name | Tanya Howell |
| Homepage | |
| State or Country | Texas - USA |
| Comments | Hi - I have a 9 year old son that was born with a bi-lateral cleft lip & palate. He has already had 8 surgeries. This has totally been a learning experience not only for me, but for my family as well. He is a VERY HANDSOME young man & is getting ready to have braces put on in about 2-3 weeks. If anyone has questions regarding cleft lip & palate, please feel free to email me. Take care y'all... |
| How did you hear about Cleft Advocate? | search engine |
| Date | 1/26/2006 |
| Name | Joe |
| Homepage | http://www.geocities.com/bird2houses |
| State or Country | USA |
| Comments | This is really a good site. Its interesting for me and, i think, to all. Thank's for you. I hope that you will the best in birdwatching's world. Best regards. Admin of www.geocities.com/bird2houses |
| How did you hear about Cleft Advocate? | |
| Date | 22-01-06 |
| Name | christina |
| Homepage | |
| State or Country | hutchinson |
| Comments | i just had my baby boy and he has a clef lip and palate. and i want to know if any one has ever hard of Dr.Singhal |
| How did you hear about Cleft Advocate? | my stepmom |
| Date | 1/16/06 |
| Name | zereen |
| Homepage | |
| State or Country | Canada |
| Comments | I am now 7 months pregnant and just on 1oth Jan 2006 through ultrasound I knew that my coming dear baby boy has bilateral cleft lip and palate!!How shocked I was.I cried for last few days continously.Then I found this website.I would only say that this site has given me all the information I wanted to know.It is a wonderful site.May peace be upon everyone who are in the same situation like me.Now I am waiting for the days to come and I already gained a lot of energy and strength to deal with the future upcoming events.I am waiting to see the lovely face of my baby boy.Please do pray for me. |
| How did you hear about Cleft Advocate? | surfing the web |
| Date | 15 Jan 2006 |
| Name | Rudy R. |
| Homepage | |
| State or Country | texas |
| Comments | My daughter was born with a cleft palate and is scheduled for surgery when she is about one year old. I was wondering if anybody knows where i can purchase haberman feeders since they are quite expensive. Any information will be appreciated. THANK YOU! |
| How did you hear about Cleft Advocate? | web surfing |
| Date | 1-13-2006 |
| Name | S |
| Homepage | |
| State or Country | FRANCE |
| Comments | Hi everybody, Our son is born with a cleft lip and cleft palate. Hopefully this was detected very early during the pregnancy so we had time to prepare everything. Anyway we found him beautiful from the first second. He underwent the lip repair last month (aged 2.5 month) and the palate repair is planned in 6 months. I want to bring to your attention the following website dedicated to the same subject for French-speaking people : http://fente-labio-palatine.forumactif.com/ Thank you for your help. |
| How did you hear about Cleft Advocate? | |
| Date | 01/12/2006 |
| Name | Anita Handy |
| Homepage | |
| State or Country | Ohio |
| Comments | My son was bron with bi-lateral cleft lip and palate on March 22, 2005. My husband and I had no idea he had this condition, so we were shocked when he was born. Thanks to all the helpful information that is out there, we had to become familiar with it. Michael's first surgery was March 6 2005, he had the cleft lip repair, his smile was so beautiful. The hardest part of the surgery was on us, the parents, the baby handle it just fine. His next surgery is Febuary 15 2006, he will have his celft palate repaired then. We are nervous about the surgery, but it will benefit him so much. I am so thankful for my son, and am greatful for every smile he has. |
| How did you hear about Cleft Advocate? | Montel Williams Show |
| Date | 1-4-06 |
| Name | Iliana Soto |
| Homepage | |
| State or Country | Ventura Ca |
| Comments | please send information with other malformation problems like vascular malformation |
| How did you hear about Cleft Advocate? | intrnet |
| Date | 01/02/2006 |
| Name | elizabeth evans |
| Homepage | |
| State or Country | arkansas, USA |
| Comments | before my child was born in September of 2005 i have never heard of cleft lip or palate. but after talking to other families that have went throught what i am going through now has really helped me alot. today is his first surgery and i am scared to dealth. i know its going to be fine but i just don't like the idea of a child or a baby going through surgery. |
| How did you hear about Cleft Advocate? | tv show |
| Date | 12-30-05 |
| Name | DONJJ1MAGAMUGU |
| Homepage | |
| State or Country | LOME TOGO |
| Comments | I DON DEY HERE O LOME TOOGO MAGA MUGU NICE SITE GOOD AND LOVELY SITE TRO VISIT |
| How did you hear about Cleft Advocate? | BY A GOOD FRIEND |
| Date | 27/12/2005 |
| Name | saul nadel |
| Homepage | |
| State or Country | new york |
| Comments | Hey I am 16 years old and I live in NYC. I have gone through a lot in my life and I am starting to prepare for college. I am wondering if there any scholarships avaiable for me. I would appreciate it greatly. |
| How did you hear about Cleft Advocate? | web |
| Date | 12/25/05 |
| Name | MGBADA IGBO |
| Homepage | |
| State or Country | LOMETOGO |
| Comments | We are Christians and believe in the power of prayer! Anyway, my question is this: can the cleft show on The doctor was apparently watching it all along, but never said anything until the last minute. We never knew he saw anything. Of course he knew what to look for and we didn't! But it does show on the ultra sound??? |
| How did you hear about Cleft Advocate? | Through internet |
| Date | 14-12-2005 |
| Name | Shari Shell |
| Homepage | |
| State or Country | Oregon |
| Comments | My grandson, Tanner was born a year ago, this December with a bi-lateral cleftlip and pallet. I am so excited to share this information with my children, as they continue to work with professionals to meet Tanners need. Thank you for being a support to so many. |
| How did you hear about Cleft Advocate? | Montel Williams |
| Date | 12/13/05 |
| Name | Big Beat Battalion |
| Homepage | www.bigbeatbattalion.com |
| State or Country | USA |
| Comments | What a wonderful cause. Best wishes, and we hope you share a million smiles with the world. big beatbattalion Smooth J and Grammar G |
| How did you hear about Cleft Advocate? | online research |
| Date | 12-13-2005 |
| Name | Casey Gore |
| Homepage | myspecialface.com |
| State or Country | Delaware |
| Comments | I just thought that it was time for me to sign the guest book. I am mom to Bryttani and her story is on the featured family page, her picture is in the gallery too. This website and the family to family connection has been a blessing to us. It gives us the chance to help others and also to get our encouragement when we need it. Debbie, you are wonderful for all you do. |
| How did you hear about Cleft Advocate? | CCA |
| Date | 12/12/2005 |
| Name | Tricia |
| Homepage | http://corndog.gotdns.com/Boat2004.htm |
| State or Country | Wisconsin, US |
| Comments | I'm so glad we've found the cA web site. My husband is 30 and has a unilateral cleft lip and palate. He recently had a bone graft from his hip to his mouth and it is going well. We'd be glad to share the doctor's name for anyone in the Minenapolis area. We are expecting a baby and the little one is due in March '06. |
| How did you hear about Cleft Advocate? | |
| Date | December 8, 2005 |
| Name | Chris Wall |
| doihavetosaydotcom | |
| Homepage | |
| State or Country | australia |
| Comments | i have a clefy pallet, always felt like a bit of a mutant but finally relaxing a bit (im 30!) i have never considered having kids because i wouldnt want to put them through my own neurotic nonsense about the lip thing...then a friend told me the other day that it can only be passed down through the mum. is that true??? if it is it koinda changes my outlook on life... |
| How did you hear about Cleft Advocate? | |
| Date | 8/12/05 |
| Name | Amanda Oliver |
| roxiechick119 | |
| Homepage | |
| State or Country | Las Vegas |
| Comments | As as some of you all know my mom is Debbie Oiver. Ithink she does a great job helping everyone with there needs. She does a great job being a mother and being someone that helps others. Even though she spends a lot of time helping other people I know that she still loves me. I don't know what I would do with out her. |
| How did you hear about Cleft Advocate? | She is my mom |
| Date | 12-6-05 |
| Name | shelly |
| Homepage | |
| State or Country | IL |
| Comments | It's about time I come across a website that will hopefully help my family deal with this situation we are hoping to find people to talk to and meet. |
| How did you hear about Cleft Advocate? | University of Chicago Hospital |
| Date | December 4, 2005 |
| Name | Kathleen & Dennis Miller |
| Homepage | |
| State or Country | Ohio - United States of America |
| Comments | This is a great site we wish we would have had this site when our son was born because no one knew what to do and how to care for him. thank you so very much and I am glad to be a part of it. |
| How did you hear about Cleft Advocate? | Oprah show |
| Date | 12/04/05 |
| Name | ALI |
| Homepage |